News

12/05/17 11:40 AM EST – The Hill.com

BY CLORINDA WALLEY, OPINION CONTRIBUTOR

As Hanna describes it, her family wasn’t wealthy, but they weren’t destitute either, so they didn’t want to accept charity because they thought they didn’t deserve.

“But even with a good job and income, when you have a child with a chronic illness, it doesn’t matter,” says Hanna (whose last name is withheld for privacy). “The medical bills pile up so quickly and become a huge burden, more than you can imagine. Even a $40 co-payment support keeps you from going into debt.”  Continue Reading

11/20/2017 06:52 pm ET – HuffingtonPost.com

For many of us, Thanksgiving is a highly anticipated holiday filled with food, fun times and family togetherness. But for people struggling with cancer, rare disease, or chronic pain and illness, Thanksgiving can be quite stressful. If you’re a “spoonie” it means you have an illness that limits the energy you have each day. Whether yourself or a family member suffers from a disease, there are some crucial things that can be done to ensure you can participate in Turkey Day without risking health in the process. Continue Reading

10/31/2017 02:02 pm ET – HuffingtonPost.com

Having a chronic illness can be confusing, isolating and scary. Moreover, the challenges of dealing with a chronic illness can be compounded by trying to navigate a fraught medical system that is loaded with complexities and red tape.

Fortunately, we live in the information age, where support and data are available at the tip of our fingers. Yet, without good guidance, it can be overwhelming to sift through the enormous amount of information the worldwide web has to offer.Continue Reading

10/30/2017 04:57 pm ET – HuffingtonPost.com

For individuals and families battling chronic illness, medical costs often pose an insurmountable challenge to accessing the care they need, forcing them to make difficult choices that can render them bankrupt.

Considering that health insurance premiums rose by 83 percent between 2005 to 2015 while the amount employees pay for their deductibles increased by 255 percent, it’s no wonder that medical debt is responsible for the majority of bankruptcy claims in the U.S. Research published in 2013 revealed cancer patients were more than twice as likely as those without it to declare bankruptcy, while those with cancer who did declare bankruptcy had a much higher likelihood of dying than those who did not have to resort to the courts to settle their debts.Continue Reading

10/04/2017 10:20 am ET – HuffingtonPost.com
When it comes to chronic illness or sports, nothing is more inspirational than a great comeback—and one of the greatest chronic illness comeback stories in professional sports is that of Rolf Benirschke. Continue Reading
For more on Rolf, please watch the following video: Rolf’s Story

09/21/2017 01:09 pm ET – HuffingtonPost.com

When 26 year-old Jane Russell of California first came down with a set of mysterious symptoms last year, she never anticipated the challenges she’d encounter in trying to pin down a diagnosis and treatment plan.

“I was preparing to leave for a backpacking trip in Yosemite when I suddenly became very dizzy, nauseous, and faint,” says Russell. Continue Reading

09/07/2017 06:47 am ET – HuffingtonPost.com

Every year, approximately 1.5 million people in the United States learn they have cancer and must decide on a treatment plan. That news and the journey ahead can be the most challenging experience of a lifetime.

The good news is overcoming cancer is becoming more prevalent. According to the National Cancer Institute, the number of people living beyond a cancer diagnosis reached nearly 14.5 million in 2014 and is expected to rise to almost 19 million by 2024. In the past five years, more than 70 new drugs have come to market, many of which arebeing described as revolutionary in their ability to help patients.Continue Reading

Back to School (with Chronic Illness)

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